Rare neurological disease patients wait years for diagnosis; systems are failing

RAPPORTEUR (EURACTIV) - Patients with rare neurological diseases wait around five years for a diagnosis, by which time their condition may have deteriorated, says Marullo di Condojanni. Unmet need in the field exceeds 90 per cent, but the problem, he argues, lies less in the science than in the system around it. Read more

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